It may not be exactly official, but Tonya, who keeps up one of the most informative blogs about dwarfism that I have come across, What is Normal? has declared this week "Dwarfism Awareness Week." She has asked other people to post about why they chose to continue their pregnancy after they received a diagnosis of dwarfism.
We continued on with the pregnancy because we loved our baby and wanted to spend as much time with her as possible, and we hoped for a few minutes with her after birth. As I have shared before, those minutes we had with Leah were worth the hard times. We had joy. We held it in our hands when we held our beautiful baby, our precious Leah whom God created and gave to us - if only for a little while. I believe we mourn more deeply because of those moments, since we can more fully comprehend what could have been if our beloved daughter did not have SRPS. That said, the memory of Leah and the time we had with her also help mitigate our pain. We had joy.
Our Leah had the cutest cheeks, precious pudgy legs and arms, and perfect little ears. We wish she would have had a non-lethal dwarfism so that she would still be with us.
We continued on with the pregnancy because we loved our baby and wanted to spend as much time with her as possible, and we hoped for a few minutes with her after birth. As I have shared before, those minutes we had with Leah were worth the hard times. We had joy. We held it in our hands when we held our beautiful baby, our precious Leah whom God created and gave to us - if only for a little while. I believe we mourn more deeply because of those moments, since we can more fully comprehend what could have been if our beloved daughter did not have SRPS. That said, the memory of Leah and the time we had with her also help mitigate our pain. We had joy.
Our Leah had the cutest cheeks, precious pudgy legs and arms, and perfect little ears. We wish she would have had a non-lethal dwarfism so that she would still be with us.
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3 comments:
...and cute little toes. We had such precious minutes with her.
Amy - Thank you for posting this. It is through parent's like you that others can become educated. By sharing your story, people realize that, even with the precious moments you shared with Leah, you treasure! Many parent's with children who live a lifetime do not get the joy and understanding that you received in in the short time you spent with her. Leah chose you because she knew she would be loved, cherished and wanted. Bless her soul and God has great plans for your family!! I am going to add SRPS onto the blog to help other's find you. Thank you!!! HUGS!
Thanks for sharing this, Amy. So many will be touched by your story, just as you were touched by Leah's brief time here. Continued prayers for healing and peace.
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